NORD — National Organization for Rare Disorders

From Unveiling Unicorns — educational information only.

What Is NORD?

The National Organization for Rare Disorders (NORD) is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD is a leading voice for the rare-disease community in the United States.

What NORD Offers

• Rare Disease Database — in-depth reports on hundreds of rare conditions, written for patients and families
• Patient Assistance Programs — help with insurance premiums, copays, travel for clinical trials, and emergency relief
• RareDisease.org resources — toolkits for newly diagnosed patients and caregivers
• Advocacy — policy work on orphan drugs, newborn screening, and access to care
• Rare Disease Day (last day of February) — global awareness campaign coordination

When to Use NORD

• You just received a rare diagnosis and need a trustworthy starting point
• You need financial help with medication costs or travel to specialists
• You want to connect with a patient organization for your specific condition
• You want to get involved in rare-disease policy advocacy

Official Link

• rarediseases.org — National Organization for Rare Disorders

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Unveiling Unicorns is a 501(c)(3) nonprofit organization focused on raising awareness and providing resources for rare and chronic illnesses.